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Live in the moment

November 9th, 2007 · 13 Comments

I believe that is the mantra they try and pound into the NICU parents. I have heard it from the nurses, the social worker even the doctor has said it. Do you know how hard it is to just “live in the moment”?! My mind likes to race forward and think of the worst possible scenario. Thursday was crazy for me. Due to lack of sleep and high emotions I was a wee bit fragile (in my mind I pronounce it fraj-E-lay, like in A Christmas Story). I went in to see the babies and the nurse said she was so worried Wednesday night but when she came in and saw Derby she felt relieved. I still felt so upset. They asked me THREE TIMES if I wanted to speak with the social worker, I must have looked like a mess. Anyways they said that Derby was on room air all night, sedated and calm. His blood pressure and heart rate stayed stable. I saw the doctor rounding so I was on pins and needles waiting for him to come over and let me know how things were. I finally decided to pump and then wait for the doctor. I had placed my bag on the counter behind all of the machines hooked to Derby’s incubator. As I grabbed my bag I somehow knocked over a clipboard in such a way that it broke the connection from the oxygen tank to Derby’s ventilator. The oxygen tank was hissing, alarms were going off, 10 people ran in from all directions as the doctor is saying “Bag him”. I was devastated. I was like Mommy Kevorkian, unhooking my baby from oxygen. The nurse told me everything was under control and go pump. I was glued to my spot in the corner. I finally walked off to the pump room trying to keep it all together. Once the door was locked I called Tadd and started bawling. People must think all I do is cry, which is not true. I spend my time pumping, eating and occasionally showering too. It takes 20 minutes to pump so when I was done I had recomposed myself. I came out and they said Derby was fine, he was only without oxygen for maybe 2-3 seconds. His nurse had been a respiratory tech for 24 years before she became a nurse. She said he was in good hands. Later it was slightly humorous, we were saying I wouldn’t be able to do that again if I tried. It was the icing on the cake.

The doctor came over with good news and said Derby could be doing a lot worse but he couldn’t be doing any better. He was surprised at how well he was doing. His actual words were “That is the best I have seen a kid do with abdominal surgery”. The surgeon cut out the perforated part of the bowel and created 2 stomas to let his intestines rest (this gives a simple explanation here). It will take 2 weeks before we know for sure how well everything has healed but when the surgeon came back to check on him he thought he was looking good. Then today the doctor on call said she was happy with where Derby was. He has lost some of the puffiness, labs were normal and he is stable. They are keeping him pretty sedated and pain free with morphine. So today has been a good day. We cant ask for anything more.

Miss Loen is getting quite the reputation. She hates to be wet and will be a total wiggle worm until her diaper is changed. It sounds cute but the one down side is she moves so much it causes her monitors to keep going off until she gets changed. Maybe she has learned to work the system. NICU doesn’t have call bells….. The pulled her umbilical line today so she is down to 2 IV lines. Her feeds are now up to 12 cc’s. If she can get up to 15 (about 3 teaspoons) and stay stable they will pull the 2nd line. She is slowly becoming line free. When Tadd talks to her she opens her eyes really big. Of course I cant tell what color her eyes are but she looks so cute. Well until she does this spooky preemie thing where her eyes cross, the doctor assured us that all preemies do it and will usually grow out of it.

Physically Tadd and I are starting to look like crap but we both felt so much better as we left the NICU tonight. I have to keep telling myself not to be too excited because tomorrow might not be as smooth.

Tags: NICU · twins

13 responses so far ↓

  • 1 Tracie and John // Nov 10, 2007 at 4:38 am

    Delighted to hear Derby is doing so well. He is quite the tough guy, and Loen such a princess.
    Our prayers continue for the four of you/
    Love and hugs, Tracie and John

  • 2 Brent, Michelle and Grant // Nov 10, 2007 at 4:46 am

    hi guys…glad to hear how well the babies are doing. Please try to take care of yourselves!

  • 3 gail pankratz // Nov 10, 2007 at 6:20 am

    T & H, who needs Cedar Point ……….just have 2 kids in NICU!

  • 4 Kay Briolat // Nov 10, 2007 at 7:41 am

    Hey Hava & Tadd you guys hang in there, I am kinda amazed at how well you are doing. Great news on Derby! Go Derby! and on Loen too! Thanks for sharing with us all. Keeping all of you in our prayers. I thank God every day for their good progress. They are soooo, sooo cute! Try to feel to vibes of love sent your way. LTA, Kay

  • 5 Debby Decker // Nov 10, 2007 at 7:52 am

    Hey Hava and Tadd!
    Glad to hear Loen is showing her spirit and at her very young age realizes the squeaky wheel gets oiled! And very glad to hear Derby is having a better day. Keeping you all in my prayer . Love Debby Decker

  • 6 Jayne Niehaus // Nov 10, 2007 at 9:41 am

    Hi Hava! I graduated from SBCC the same time as you. Denise Myers told me about your blog this week, and I came home from my shift on 4C the other morning and read the whole thing in one gulp. I am thinking the most positive thoughts I can for you, Tadd and your beautiful babies. Take care!

  • 7 Anoter Mama of Premature twins // Nov 10, 2007 at 12:23 pm

    Congrats on your beautiful twins! I arrived at your site when I followed a link from my Youtube video. I know what you are going through. I had three premature kids. Just know your babies will be fine, home in your arms before you know it. Soon the NICU will only be a memory. Here is the clip of my twins in the NICU.

    http://youtube.com/watch?v=z4z9nEgtBCE

    My advice: ALWAYS hang a bag of chocolate on their isolettes. Nurses love chocolate and will always be close to your babies should the alarms go off.

  • 8 Anoter Mama of Premature twins // Nov 10, 2007 at 3:53 pm

    most importantly, hang in there and stay positive. get through the next couple months one day at a time. the up’s and down’s get less intense the older they get. keep pumping.

  • 9 Sarah Sabatini // Nov 10, 2007 at 10:11 pm

    Hey you guys just wanted to say hi and that I love you all…..

  • 10 Hatchet // Nov 10, 2007 at 11:56 pm

    Alright Derby! Nice going, Loen!

  • 11 Joan Lisse // Nov 11, 2007 at 11:31 am

    You continue to be in my thoughts and prayers, and I hope today will be a wonderful one for Loen, Derby, and their Mom and Dad.

    Take care,
    Joan

  • 12 Grandma Lavon // Nov 12, 2007 at 12:41 am

    That’s good news, Hava, thanks for posting it. You have a terrific gift as a writer. Keep hanging in there with your wonderful babies. Take care of yourself and Tadd too.

    Love you Hava, Tadd, Loen and Derby. Grandma

  • 13 Danger to myself and others // Sep 24, 2008 at 8:15 am

    [...] I talk about how I am a danger to others. Namely my daughter. (some may remember that I had almost asphyxiated my son when he was just weeks old) On the flight home from Michigan the nail that I glued ripped off. It was now a nice jagged little [...]

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